FEBRUARY 2016. BUTLER, NEW JERSEY – The Congenital Heart Defect Coalition (CHD Coalition) bestowed a $50,000 grant to the Children’s Hospital of Philadelphia to advance groundbreaking research that offers a huge potential to extend the lifespan of individuals born with heart disease. While the research study entitled, “Genotype Identifies at Risk Population for Long Term Complications in Tetralogy of Fallot (TOF)”, focuses on one of the most common congenital heart defects, Dr. Goldmuntz’s findings can be applied to other types of CHDs as well. Ultimately, the study will help predict future complications for children with TOF who underwent corrective open heart surgery, and through personalized care can improve their long-term quality of life.
The grant was possible due to the very successful annual CHD Awareness Walk and Family Fun Day held in September at Darlington County Park in Mahwah, NJ. In 2015, the 914 participants raised over $84,000 to allow the CHD Coalition to continue its mission. In addition to progressing research programs, proceeds from the Walk are used to award college scholarships, provide non-medical support, and advocate for National awareness.
Congenital heart defects are the #1 birth defect worldwide, affecting nearly 1 out of every 100 babies born. There are more than 40 types of CHDs. Little is known about the cause of most of them, and there is no known prevention or cure. While the physical defects are often corrected with surgical procedures, the resulting heart disease requires lifelong treatment. Despite the magnitude of the disease, it does not get sufficient public focus compared to other conditions.
For more information about the research study, or ways that you can help support research funding efforts, contact firstname.lastname@example.org.
ABOUT THE CHD COALITION
The Congenital Heart Defect Coalition (CHD Coalition) is a charitable nonprofit organization whose sole purpose is to improve the quality of life for children and adults born with heart disease, also known as a congenital heart defect or CHD. The three main pillars of its mission are focused on uniting and supporting the CHD community; increasing public awareness; and raising money for lifesaving medical research.
A significant differentiator between the CHD Coalition and similar organizations is its commitment to research. Innovative research and emerging medical technologies offer an enormous impact on the survival and long-term care of individuals affected by heart disease. Unfortunately, research has been seriously underfunded due to a lack of widespread national awareness.
Founded in 2011, the organization is operated and managed by volunteers dedicated to its cause. The volunteers come from a diverse background: caring individuals, parents, doctors, nurses, and CHD Survivors. Together, we are here to make a change.
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