The Congenital Heart Defect Coalition (CHD Coalition) is a charitable nonprofit organization whose sole purpose is to improve the quality of life for children and adults born with heart disease, also known as a congenital heart defect or CHD. The three main pillars of our mission are focused on uniting and supporting the CHD community; increasing public awareness; and raising money for lifesaving medical research.
A significant differentiator between us and similar organizations is our commitment to research. Innovative research and emerging medical technologies offer an enormous impact on the survival and long-term care of individuals affected by heart disease. Unfortunately, research specific to CHD has been seriously underfunded due to a lack of widespread national awareness.
While research offers the huge potential for improvement and prevention of CHDs, programs that support the community and hospitals deliver an immediate benefit to the families and children. For this reason, the Congenital Heart Defect Coalition is a very unique organization that understands the importance of contributing to both.
We were originally established in 2007 as the Northern New Jersey Chapter of It’s My Heart. Our network of families quickly grew throughout NJ and extended into many of the New York City hospitals. In 2011, the organization was reformed as the Congenital Heart Defect Coalition and continued its growth. The Congenital Heart Defect Coalition national office and all chapters are operated by volunteers dedicated to its cause. There are no salaried employees. The volunteers come from a diverse background: caring individuals, parents, doctors, nurses, and CHD Survivors. Together, we are united to make a change.