You are not alone on the journey of living with congenital heart defects (CHD). We at the CHD Coalition have been there. We have endured every phase and experienced all the emotions—from sad and scared to happy and hopeful. That’s why we’re united in supporting and celebrating each other every step of the way.
As a community of Heart Parents and caregivers, we have children with various CHDs and severities across a wide spectrum of ages. While our support cannot and should never replace professional medical care, the CHD Coalition is an invaluable resource for connecting with people who are on the same journey.
But our support doesn’t just help adults. Lifelong bonds and friendships form between the children, as well. In their own special way, the children and young adults give each other confidence. They learn they are not the only ones with a “second belly button” or “zipper”—and that someone will always be there for them.